Rowan Langille’s journey began May 13, 2010 at the age of 18 months. Rowan was diagnosed with an Ependymoma brain tumour and severe hydrocephalus. He immediately had surgery on the 14th to resect 95% of it.About 3 weeks later he had surgery to insert his g-tube and port a cath and 1 week after that we began chemo. Rowan had endured 2 rounds of chemo and 33 radiation treatments on his brain. He had finished treatment on the Thanksgiving weekend of the same year! We were very ecstatic that we had made it through. Rowan ended up having to have a VP shunt put in his head in January 2011 to help drain the excess cerebral fluid that remained. He then continued to go for MRI’s every 4 months. Everything was coming up stable!
That was our first summer at Camp Trillium! We were a little hesitant at first but then we had met other families that said we had to go because it was the greatest family experience and everyone there could relate to our story. The week we were there was truly amazing! The kids were all treated like gold and everyone was treated equally regarding the situation. We have 4 children and they all truly enjoyed it. That was the first place where there were other children who could relate to the situation they were in. In the New Year Rowan started to complain that his back was really hurting and we thought it was because he really enjoyed playing hockey! We took him back to clinic in Feb 2012 and they immediately ordered another MRI.
The next day we found out that Rowans cancer had returned and there was a tumour on his spine and coating all the way down his spine. The only option we had left was to do radiation on his spine. He immediately started within a week of diagnosis. Rowan endured another 28 treatments on his complete spine all the way up to where they had left off from the initial radiation. So far his tumours have remained stable and we are 8 months post treatment. He now goes for MRI’s every 3 months and has continued to amaze the oncology team.
We did attend Camp Trillium again this summer and had a truly amazing time and met even more families. It is a place that you can go and relax and forget about everything that you have endured as a family and just let loose. We truly enjoy going to camp and have the intention to keep going every year as long as they let us! I am hoping that all my children will pay it forward by going back to be special friends to the up and coming new families when they are at the age to do so. We thank Camp Trillium for giving us the opportunity to regroup and have the special bonding with our families that we need to keep going through this journey.